Wednesday, 25 May 2016

Life & it's struggles blog 7

Well its been a while since I blogged, life just takes over, the weeks have been flying by and now we are nearly in June!
So what's been happening?
Well im having more tests done, ive been passed from a gastro specialist to a neurologist, and im having a tilt table test, a what? I head you say..... well basically I'm going to strapped to a bed and have the bed tilted whilst hooked up to machines to see if my blood pressure goes nuts! It's because I've been going dizzy and getting palpitations, usually after standing up.
They're looking for symptoms of POTS Postural orthostatic tachycardia syndrome.!!!!
Why such a long words! Is it it bad enough to be coping with these conditions let alone having to say what they're called too 😂
But I suppose it could be worse, and very boring.
So along with that I've been having pains in my stomach and round to the right, yep the liver again!
My very lovely gp Dr Haining arranged a ultrasound and the result was that I have lots of gall stones caused by.....yep autoimmune disease!  It has a lot to answer for! !!
On a positive note my fabulous group Sjogrens Support UK is now 3 years old and has 950 members!!! So so proud.
I've been thinking lately (thats never good)
All that we go through, our friends and family, and some plot us really do get dealt a crap hand, ive tried to put myself in their shoes and quite frankly im happy being me, I can say oh look at them they don't have a stupid illness to contend with but usually they have worse to deal with, some have lost children, some have lost loved ones, some are dying and some have been left by their partners, its happening all around me,
And its horrible.
So much so that I've really been questioning life lately. (Thats definitely not good!)
Maybe it comes with age but I feel I'm experiencing alot lately.
And learning constantly. (That is good😃)

No comments:

Post a Comment