I have received a appointment for my lumbar puncture to release the enormous amounts of cerebral spinal fluid from my head, it can't come quick enough. Everyday the pressure is just too much, headaches, dizziness, hearing loss, palpitations......... :( what worries me is what if it isn't iih? What if after the LP I still have pain. Or what if they take too much and I'm left with a lumbar headache? I've had that before in 2006 when I had viral meningitis and I was in so much pain in my head I couldn't even go out in the car as the vibration of the engine hurt my head too much! Ouch!
When is life going to be simple? When will I not have to wait for a referral, a test, a new med, a Drs appointment? ...........that's never going to happen!
So this month alone I've had 2 hospital appointments and 2 gp appointments, 1 new medication & 3 phone calls to and from the hospital, it's ok, I'm not complaining, what's the point? This is my life, I've learnt to live like this and it really is ok, you see this month a very close friend of a close friend lost her battle with cancer, she was only 55, and another friend has had a stroke and is fighting for her life in intensive care, she's in her early 40's, and today and very young 20 something friend of a friend died from a brain tumour, although these were not my friends, they were my friends friends so I've watched them grieve, and cry, and worry, so in turn this effects me too.
What I'm getting at is that every now and then life is put into perspective, I'm extremely lucky, and I thank my lucky stars for that.
Look around you, there are sick people, dying people, homeless people, poor people, abused people, heartbroken people......the list goes on.....
And that's my point, that's why I'm not complaining, just raising awareness.
A friend of mine just last week was accused of ramming her illness down people's throats, I mean why would someone say that? It's our choice to read these posts and obviously if your reading this then you've chose to read my blog so you can't sit there complaining, "oh look she's going on and on about her damn illness again!......" Well don't read it! It's simple!
I come to thinking that if your friends with me and you don't like what I write then don't be friends with me! Harsh but true.
And I hope none of my friends don't feel this way? Or if they do I hope they don't tell me, just refrain from reading my blogs or endless posters about awareness, if I had a hobby like photography or flower arranging then I post pictures of that and that would be ok, so it just so happens my hobby is being ill! No not really! It's raising awareness of autoimmune diseases, well no not a hobby more of a mission! Charlie 😉 x
